Meet Stephanie, whose daughter Annabelle was diagnosed when she was 4 months old. Now at age 7, Annabelle is on VIMIZIM® (elosulfase alfa), and her mother shares how it has changed the way Annabelle lives with Morquio A.
Learn more about Annabelle’s experience with VIMIZIM.
“My daughter Annabelle started her VIMIZIM infusions in September 2011 when she was 5 years old. Before her first infusion, my husband and I prepared her by telling her that she was going to get an IV in her arm. We were honest with her about what was going to happen and she just went along with it. Annabelle did great.
Since that first infusion, VIMIZIM treatment has become a weekly routine for us. Every Wednesday we wake Annabelle up bright and early to get her dressed and out the door so we can take her to her treatment. We have a 7 am appointment, and we’re there for about 5 hours. It takes up a big part of the day, but it’s absolutely worth it. We are definitely seeing the benefits of VIMIZIM for Annabelle.
During her infusions, Annabelle likes playing games, coloring, listening to music, and watching fun or educational shows on the iPad®.a Sometimes she’ll put the iPad aside and write stories or draw pictures. She also has access to schoolwork that she might be missing because of her treatments. Her teachers have been amazing by rearranging class schedules and making sure she doesn’t fall behind.
We also get a lot of support from the staff at the hospital. They are like our second family. We usually have the same few nurses that work with us to give Annabelle her infusion. We celebrated Annabelle’s birthday in the bed during treatments, and they brought in cupcakes and a clown for her. She has fun with everyone that comes by to say hello to her while we’re there.
I’ve seen a dramatic improvement in Annabelle’s condition since she started treatment. Now she is interested in activities like riding her bike and playing with other kids—things she didn’t do as much before. I can tell that her stamina is getting a whole lot better.”
a iPad is a trademark of Apple, Inc., registered in the U.S. and other countries.