Get to know how Derric feels about his weekly treatment with VIMIZIM®
“My infusion day usually starts early. I get to the clinic at 8 am and eat the breakfast I brought with me while they get everything ready for my infusion. They start by checking to make sure I am healthy enough for treatment that day. Then, they order the infusion from the pharmacy, which can take a little while. From start to finish, the infusion itself can take several hours.
During that time, I’m usually in a bed or a chair. Other than not being able to move around that much, I can do whatever I want. There’s a lot of downtime, so I’m able to socialize with friends in the clinic or spend time with my sister who receives infusions with me. I also use my iPad®a to read eBooks, catch up on articles I’ve saved for infusion day, or play games. Some of my favorite games that help pass the time are Tiny Wings, Peggle, Plants vs Zombies, and Harbor Master. I also listen to music during infusions. Music is especially helpful for relaxing, because it drowns out the background noise of the busy room.
At different times, the nurses come by to check on me and make sure the infusion is going well. I’m very close with the nurses I see every week. You develop relationships with them. Knowing they’re there, and that they know exactly what to expect from the infusion process, is reassuring.
When I first started VIMIZIM, I didn’t know what to expect from the year long trial. But soon after I started, I made the decision to stick with it. It’s been just over 2 years, and I’ve only missed 1 appointment. I’d say the sooner you can commit to this being something that’s going to benefit you for your whole life, the better it will be for you. Probably the biggest benefit I’ve experienced has been in endurance and being able to do more things. I can be more active. Maybe I lose a day once a week, but I’m more active for the other 6 days. And that is valuable to me.”
a iPad is a trademark of Apple, Inc., registered in the U.S. and other countries.