Talking to your doctor about VIMIZIM
The next time you see your doctor, bring these questions about VIMIZIM® (elosulfase alfa) with you so you can learn more about treatments, effects, and infusions. Think of these as starter questions, and feel free to come up with some of your own.
- Why do the “International Guidelines for the Management and Treatment of Morquio A Syndrome” recommend starting enzyme replacement therapy as soon as possible after diagnosis?
- How does VIMIZIM work?
- How does VIMIZIM fit in to my overall management plan?
- What can I expect to change from VIMIZIM treatment?
- Why can’t I take VIMIZIM in pill form?
- How soon will I start to see a difference?
- Is my child too young for VIMIZIM?
- Am I too old to get VIMIZIM?
- I want to take VIMIZIM, but do I really need to get weekly treatments?
- What are the possible side effects of VIMIZIM?
Talking to your doctor is not always as easy as talking to a friend. Here are some helpful ideas to make your visit to your doctor worthwhile.
Do bring a list of questions. You may have a lot of questions to ask before your first treatment. Your doctor expects this, so don’t be shy about asking.
Don’t wait until the last minute to tell your doctor what you are REALLY worried about. When you are walking out the door is not the time to mention that needles make you nervous. Bring it up right away.
Do ask your doctor to help you understand what you’ve learned from reading or talking to your friends or surfing the Net.
Don’t pretend you understand if you really don’t. If you need added explanation from your doctor, don’t be afraid to ask for it.
Do bring a friend or family member with you to help take notes or ask questions.