BioMarin RareConnections™: personalized support to help people with Morquio A gain access to VIMIZIM
BioMarin RareConnections™ is committed to working with patients, physicians, and insurance providers to provide access to VIMIZIM® (elosulfase alfa) therapy and ongoing support. The BioMarin RareConnections team includes an Account Manager, Case Manager, and Clinical Nurse Educator, all dedicated to helping your patients start and stay on VIMIZIM.
Support for physicians
BioMarin RareConnections can provide you and your staff a range of services
- Access to laboratory testing around diagnosis confirmation
- Coordination with site for drug delivery logistics
- Infusion day coordination and logistics
- Patient support (see below)
Support for patients
BioMarin RareConnections provides patients a wide variety of support services at no cost
- Education on Morquio A and VIMIZIM
- Personalized support to navigate the reimbursement process for tests and treatment
- Additional treatment support such as transportation assistance
- Help with treatment continuity regardless of life changes
Access to treatment
BioMarin RareConnections Case Managers can help patients and treating physicians navigate the reimbursement process as it pertains to necessary tests and treatment. If a patient has limited or no insurance, BioMarin RareConnections will work with them to find out if they qualify for an assistance program or whether alternative ways to cover infusions need to be explored. If needed, Case Managers can direct patients to third party, nonprofit organizations such as the National Organization for Rare Disorders (NORD) that can potentially help pay for VIMIZIM.
Treatment support is offered for patients receiving infusions at a clinic or in the home setting.
- For patients receiving infusions at a clinic, case managers can arrange transportation to and from the clinic and ensure that VIMIZIM is delivered to the clinic prior to infusion
- BioMarin RareConnections will also support the transition to home infusions for each patient, as directed by their physician. This may include finding and training an infusion nurse, ensuring VIMIZIM delivery, and helping the patient with proper storage
Starting on and staying on VIMIZIM
Longterm commitment to treatment can be an issue with chronic therapies such as VIMIZIM. BioMarin RareConnections Case Managers are available to help patients make necessary plans to maintain their weekly infusion schedule, especially in the face of changes such as a new job, new insurance, a move to a different location, or going off to college.
Enrolling in BioMarin RareConnections
In order to benefit from BioMarin RareConnections, patients must sign and return the HIPAA (Health Insurance Portability and Accountability Act of 1996) consent forms. These forms can be obtained by contacting BioMarin RareConnections or by downloading them here.
Please contact BioMarin RareConnections if you’d like assistance with either of these steps.